Authors: Catherine Hale, Sonya Chowdhury, Clare Ogden and Emma Hypher
M.E./CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from a survey carried out by the charity Action for M.E, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.
850 people with M.E./CFS took part in the survey, describing the effect of the condition on their daily lives, their need for social care, and their access to advocacy to facilitate this.
The publisher is Action for M.E.
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Catherine Hale's article explains how a range of UK government policies target disabled people.
In this significant report Catherine Hale explores the experience of a key group of disabled people who have been slotted into the 'Work Related Activity Group'.
Dr Claudia Gillberg reflects on her own experience of living with the chronic illness, myalgic encephalomyelitis or ME, describing the multiple challenges she and others face.