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Close to Collapse

Authors: Catherine Hale, Sonya Chowdhury, Clare Ogden and Emma Hypher

M.E./CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) is a chronic disabling condition that can have a devastating effect on people’s lives. This interim report, based on findings from a survey carried out by the charity Action for M.E, demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.

850 people with M.E./CFS took part in the survey, describing the effect of the condition on their daily lives, their need for social care, and their access to advocacy to facilitate this.


The publisher is Action for M.E.

Close to Collapse © Action for M.E. 2015.

All Rights Reserved. No part of this paper may be reproduced in any form without permission from the publisher except for the quotation of brief passages in reviews.

Documents

People

Catherine Hale

Catherine Hale

Library

The Big Society Fails the Hardest Hit

The Big Society Fails the Hardest Hit

Catherine Hale's article explains how a range of UK government policies target disabled people.

Fulfilling Potential?

Fulfilling Potential?

In this significant report Catherine Hale explores the experience of a key group of disabled people who have been slotted into the 'Work Related Activity Group'.

A Troubling Truth

A Troubling Truth

Dr Claudia Gillberg reflects on her own experience of living with the chronic illness, myalgic encephalomyelitis or ME, describing the multiple challenges she and others face.

Energy Impairment and Disability Inclusion

Energy Impairment Disability Inclusion

This ground-breaking report outlines the barriers facing people with chronic illness and explores the concept of energy impairment.